family

My Cancer Journey: Somethings Not Right Here

Posted on by kwundrow

T – 14 and counting

Four weeks in, with still 14 days to go. The good news is I get Christmas Eve and Christmas Day off next week, and I may even get out of one chemo treatment. I’m almost giddy thinking about it—though maybe that’s just the weight loss making me feel lighter. I’m officially back to the weight I was when they issued those old drinking IDs. Remember those? If not, you really missed out on a strange little era of draft cards and drinking licenses. Mine was worn thin from how often I had to pull it out. Anyway… I started treatment at 180 pounds. This morning I was 167. Quite the weight-loss program.

There are reasons cancer treatment takes the pounds off. Part of it is the tumor just wearing me down. Part of it is my throat not exactly loving the idea of swallowing food—more on that in a minute. But honestly, the biggest problem is taste. You don’t realize how much taste matters until it disappears.

When we enjoy food, it’s never just one sense. We see it first and remember what it should taste like. Then we smell it, and that makes us even more excited. Sometimes we even feel it—like a hot dog in a bun—before we finally get to that first bite. And when the taste matches or beats our expectations, it’s wonderful. When it doesn’t, everything falls apart pretty quickly.

Now picture your favorite pie. It looks amazing. It smells perfect. You’re ready for that first bite. For me, it’s pumpkin pie with a generous pile of whipped cream. That first bite is everything I hoped for—warm, creamy, delicious. Then I take a second bite… and suddenly it’s like a completely different pie. It tastes old, wrong, almost spoiled. It’s so awful I push the plate away and try not to give that bite back the way it came.

That’s what treatment has done to my taste buds. It isn’t really the tumor or pain that’s caused the big weight loss—it’s the fact that food just doesn’t taste right anymore. So now I’m living on things like cream of wheat and oatmeal. Bland foods, little expectation, fewer disappointments. I miss my favorites—pie, desserts, chocolate. And the hardest part is the food friends have lovingly brought us. Their hearts are in every dish. Many of them are proud of these meals, and I wish I could enjoy them the way they hoped I would. But most of the time I barely make it past a first bite. I worry it makes me look rude, but it’s just the reality right now.

So that’s my confession. I appreciate every gesture. Truly. I just can’t eat most of it. If there’s one upside, I probably did need to lose a few pounds—the tumor just got a little too enthusiastic about it. And when all of this is over and my taste finally returns, we’ll have a freezer full of meals waiting for me.

My Cancer Journey: Shrinkage is Good

Posted on by kwundrow

T- 17 and halfway point reached. Today we had both chemo and radiation treatments. This meant we were able to speak with both doctors in charge of my treatment and the take away, is good news. At the very least that is what Deb and I heard.

The tumor has started to shrink, which has ramifications for what’s next. Radiology will reset their markers and be able to focus the radiation away from the muscles of my tongue. This could mean a lessening of the pain I endure when I try to swallow anything I eat. Because the magnesium pill I take is very difficult to swallow, the radiologist recommended getting my magnesium through gummies. He has also okayed, almost recommended, switching to THC gummies to get the added benefit of increased appetite and some relief to my now long gone taste. That recommendation has not been completely accepted by my head nurse, Deb, but we’re working on it.

On the oncology side, we are being given a chemo holiday next week, perfect timing there, due in part to my platelet count dropping below the threshold for safe administering of chemo. Still, the good news is that we may only need one more session of chemo even with the one-week skip.

This is good news and it leads me to the first of my cancer treatment rules. For fans of HGTV, you may recognize my shameless use of the “Vacation House Rules” program.

Rule #1.  Find your support team

The temptation is to keep everything to yourself and just go it alone. This is a mistake. People want to feel useful when you get handed this crappy diagnosis. To deny them that chance isn’t fair to them and you. On top of that, you will be wasting a valuable and well-deserved side benefit. Don’t suffer alone, drag your friends in. I was kidding there. Ironically, they will thank you later for honoring them with the chance to show they really care. Now who doesn’t want that feeling? It’s a win win situation and when you have cancer take all the wins you can. Which leads me to my next cancer treatment rules.

Rule #2. Attitude is everything

You weren’t looking for this gift of cancer, but you also can’t walk away from it. The first thing that goes is your whole outlook on everything. That is to be understood. There is a boat load of hard work, discomfort, to put it lightly, and a tsunami of information appointments coming at you. Attitude is critical now. You can give into your cancer, or you can start finding a way through this. You do just that, if you look for the positives. The team of clinicians and doctors assigned to you will do everything they can to fight your cancer. There are even doctors on your team that  to guide you through that maze that the whole protocol created. Lean on friends, see Rule #1, and take each day as it comes. Find the reasons to smile, something worked, something felt a little better, or you just reconnected with a friend who found out you were in need. The little things matter. And that leads me to cancer treatment rule three.

Rule #3. Put in the work

Don’t let anyone tell you this will be easy. It won’t be. Cancer needs to be beaten, not ignored, not taken for granted, and certainly not coddled. You have to do the work. If you have to get up early every day to drive in to the clinic, don’t make your partner drag you out of bed. When they lay out the treatment schedule, get a handle on it. Prepare ahead mentally for what that day will bring. Being ready is good for you and the team. If this whole journey is going to end successfully, it is the effort you put in that will get it there. Prescription is half the battle. You still need to take the medicine. And that leads me to my final rule.

Rule #4. Follow the plan

Cancer is a team sport. Your team has multiple members. Your quarterbacks: the doctors, your running backs: the nurses, your offensive line: your friends and family keeping you safe through the process, your center: this is your most trusted partner, the person who will take charge of the battle at home. This team will collectively lay out a plan for tackling your cancer.  You need to trust these people to have your best interest at heart and because you trust them, follow the plan. There will be days when you might not want to do what’s being prescribed, but if it’s part of the plan, do the work. You are going to beat this. That’s part of the plan.

Deb and I got good news today. I can tell you that it is in no small part due to these four rules. My fight isn’t done but my attitude, my team, and the plan are getting it done. Tomorrow is day seventeen. Bring it on.

My Cancer Journey: Riding the Chemo Express

Posted on by kwundrow

December 5th

T – 24 and I am on the ride. My cancer treatment consists of two parts. The first is radiation and the second, chemo. It’s chemo lag day, at least that is what I’ve named it. I soaked in my second serving of chemo three days ago and as predicted by those in the know, I am feeling it. Chemo will do its best to kill the tumor, but the downside is that it takes its toll on the body.

The effects of my first serving of the chemo were hardly noteworthy. I barely noticed anything different than the radiation effects. This second serving is markedly different. It has left me feeling like I just got over the 24-hour flu with its chills, aches, nausea, and fatigue. My activities take place in short bursts of energy followed up with fatigue. The only upside has been the weekend pass Deb has granted me. In her role as resident in charge, Deb has ordered me to take the day easy, watch TV, and allow her to wait on me, hand and foot. This order is one I can manage. For now, I will take small comfort knowing I have survived my first two legs of the Chemo Express.

I boarded The Chemo Express two weeks ago and I am now destined to ride it to the end. Only two days ago, I was at the top looking down into the loop. Today I am in the loop, upside down, and waiting to head back down to the bottom. As my car starts back up the track on Monday, I know full well that the scariest part of this ride still lies ahead. The climbs will get steeper and the loops will get tighter, but I have no choice other than to hang on and let Deb and my friends be my seatbelt.

There is no way that anyone can or should go through this alone. Though there is a team of medical people standing by, it is the nonmedical stuff that can be the toughest. With every passing day, I will have missed another event or lost the taste of another one of my favorite foods.  This ride is tough in so many ways, but it’s survivable. Every day, I hear from friends asking what they can do to help. I wish there was an easy answer, but there isn’t. I appreciate all the messages of encouragement, the prayers, and offers to drive me to treatment. In truth, I’ve had so many offers of a ride, I may have to extend my treatments to get them all in. And here’s a thought, once I lick this thing, can I continue to take advantage of the taxi service?

I understand the “what can I do” inquiries, I’ve been there too, just now I’m on the other side. Please know this, everything you do, from sending an email, to checking in, or the offer of a meal, is important to me. They build my resolve to see this through the rough spots, to stay on the ride to its end. It’s incredible how strength exists in just saying the words.

The best thing you can do for a person dealing with cancer is to be there. You do it with every effort you make, with every prayer you offer. Whether you really get to drive me to treatment or not, know that the offer alone was all I needed. Knowing that you would sit beside me on the Chemo Express is all that’s needed to guarantee I won’t fall off.

A Magical Invitation

Posted on by kwundrow

It had been one of those days. It seemed like every time I got one task completed, the next one fell in my lap. I was leaving a late evening meeting, when she called. I had planned on going home and relaxing, when I saw the missed call from my daughter. My mind ran through the scenarios, ranging from just checking in to needing my help. As my finger poised over the call back option, I entertained letting it go until morning, but could I? The answer to that was I couldn’t, and I called her back.

When she answered, it was obvious she was excited about something. I gathered through her giddiness that she was with my son-in-law and granddaughter in the countryside watching the northern lights.  She was inviting me to come join them and strangely, I was considering turning down her invitation. In my defense, I was tired and it was getting late. It would be a thirty-minute drive and I would have to find this field in the middle of nowhere. I had seen northern lights before and this far south, they were never that impressive, at least for me. But she was so insistent, and my decision was made.

It was all of the thirty-minute drive and without GPS, it would have been a task to find them. They were out in a large, recently picked corn field found just off a barely two-lane country road. As I got out of the car, my daughter approached. “They just stopped she proclaimed, but we are hoping they will start back up soon.” Great, I thought, this is going to turn out like all my other efforts to see northern lights. Just then it happened. It was as if someone had suddenly flipped a light switch in a dark room. The sky filled with reds and greens, shimmering and growing brighter with every passing second. There were towers of red streaming straight up like fireworks. Sometimes, the sky was filled with fan-like displays. The reds faded to orange, and then the greens filled in the gaps. It was a mesmerizing display.

I spent over an hour out there in that field. My daughter and granddaughter were at my side. We stared in awe at the night sky. The northern lights display would have been well worth the effort on its own. But, as I stood there with them, it became clear to me what a gift I would have passed up. She was insistent on my coming out. How had I not realized the true reason I had to come out there? This was what every father craves. It was her invitation to join her. The adventure is so important to her that she needs you there to share it with her.

Standing out in a corn field looking up at the night sky was special because I shared it with her. That invitation I almost ignored made the adventure sweeter, made the experience deeper, made the evening memorable. I can only hope that there will be more invitations, more adventures to share. And above all, that I wouldn’t ever fail to accept that invitation when it comes.

Early Morning

Posted on by kwundrow

We were recently in Aruba with another couple for a week of sun, warmth, and relaxation. I had been given the task of securing our cabana on the beach each morning. Due to the popularity of our beach, you needed to be there by 6:30 in the morning if you were to get one of the much sought after cabanas. This was an easily accepted task for me as I tend to have a hard time sleeping past 6:00 anyway. For the first three days, I arrived right around 6:30 am and along with the other early cabana claimers, would find an open one, plant a coupe of stake holder chairs with towels, and then head back to the condo where by this time, everyone was up and moving.

For our last day on Aruba, we were undecided as to whether we would spend our last hours on the beach, or use them to grab a little last sight seeing. For reasons unknown to me, I awoke just before five am that morning, and lying awake next to my sleepy spouse, decided I would take our chairs and head down to the beach earlier than usual to claim a spot on the off hand chance that beach time would win out over sight seeing. As I stepped out onto the street that separated our condo from the beach, I couldn’t help but noticed the stillness of the predawn hour. Save for the waves lapping the beach, there were no other sounds. The city was still asleep. Where the morning before there had been a fewer runners and an occasional vehicle, this morning it was too early even for that. I was alone.

At face value, loneliness is not generally a welcome companion, but this loneliness had such a different feel. I wasn’t lonely, I was simply alone. The beach, softly backlit by the street lamps of the empty boulevard behind me, was deserted at this hour. Having staked out my claim, I began to walk the water’s edge as the ocean crept up the sand beach and lapped at my feet. Realizing that going back to the condo would be too early for my sleeping roommates, I decided to enjoy my alone time. I headed back up the beach and out to the silent street. I decided to walk the ocean front, soaking in the quiet of the city. As I walked, I eventually found myself at a small diner, the only open business along my entire walk. The thought of a hot cup of joe in this cozy diner suddenly was very appealing. As I entered, I found myself as the only other patron in the diner. At that point, had there been even a small crowd, I am sure I would have left, but as it was just the two of us and the waitress, I grabbed a seat. By the time my coffee came, I had struck up a conversation with my fellow diner, revealing where we were from and what had found us here so early in the morning.

With my coffee consumed and the sun just beginning to push back the darkness, I began my walk back to the condo. Unlike my walk to the diner in a city still asleep, she was now beginning to stir. Cars were starting to frequent the street, runners were emerging from beachfront condos, and the sounds of the city began to push back the silence. A building crane over here and a truck over there each adding there sounds to the growing noise of a waking city. By the time I reached the condo, the sun was climbing out of the ocean and sunlight began to replace streetlights. My alone time was ending.

Though there doesn’t need to be a point to story telling, there is a point to this one. I write it to preserve the beautiful memory of that morning and to share the image with whoever has experienced something similar. We can choose to be lonely, or we can welcome the opportunity for alone time. In a world filled all too often with bad news and unwanted noise, the quiet of being alone might truly be inviting. Do understand, I do not dismiss the dangers of loneliness, for there can be danger when mixed with a sense of despair or hopelessness, but rather that sometimes the best times are those quiet times alone. In those times we avoid the distractions of life and find the ability to refocus on what is important.

For me, that early morning walk with just the quiet of the predawn morning as my companion, will be my favorite memory of our week in Aruba. The sound of the waves, the empty streets, and that cozy diner shared with a stranger were exactly what I needed. What a perfect ending to an island getaway. It was the relaxing last moment before I would deal with the cacophony of the world awaiting me back home. It had reminded me that I had the ability to push out the noise and refocus my thoughts. Here’s hoping you can savor your next alone time, and that like I did that morning, you can find the beauty in the quiet that surrounds you.